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In September, krew members will be blogging from two events (involvement in presenting and managing the events permitting).
Margaret, Peter and Rod are due to be presenting at the Medicine 2.0 event in Toronto, Canada on 4-5 September. We will be blogging here, and on Rod’s Informaticopia blog, probably using Twitter, and there may be some kind of ‘official’ event blog or aggregation of blogs from the event. We will keep you updated.
Karl and Peter are members of the Organising and Programme Committees of the EFMI Special Topic Conference to be held in London, UK on 9-11 September. We hope to find some time to do some blogging, but cannot guarantee it.
Technorati Tags: Medicine 2.0, EFMi, open source, free software, FLOSS, Toronto 
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We promised to add here the webliography of materials we found when prepping our SINI2008 session (see >>>). Much of the material is listed at the end of the presentation (which you can find linked from our post about it), but we add the full list here for those who don’t want to go off searching.
For those wanting a ‘taste’ of Second Life without signing up and delving in, there are plenty of YouTube videos. Its possible use has also been discussed in many blog posts, and there is a growing academic literature, as well as other literature discussing Second Life, PHRs, etc.
Rather than make this post too long, go to this GoogleDoc page for the full list - >>>. As they say ‘enjoy’ - and feel free to add any new resources in the comments (subject to moderation).
Technorati Tags: SINI, PHR, YouTube, blog
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The closing keynote presentation is from Patricia Brennan, from the School of Nursing and College of Engineering at University of Wisconsin Madison and National Program Director of Project HealthDesign. Her talk is titled ‘Building connections for patient-centred records: bridging the last 10 feet!’
We will be posting on coveritlive, so click on the following link to follow our report or access the replay: >>>
Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR
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The penultimate session of SINI2008 is a panel presentation titled ‘Project HealthDesign: rethinking the power and potential of personal health records’.
We will be posting on coveritlive, so click on the following link to follow our report or access the replay: >>>
Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR
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Opening session is by Judy Ozbolt & Mary Etta Mills titled “Trailblazers and pioneers: Nurses leading the advancement of informatics”. Specifically this presentation focuses the graduates of the School of Nursing, UMAB. Acknowledgement includes Virginia Saba. She starts with an overview of NI (Nightingale et al) with Nightingale as the ‘1st’ NI person (or the founder). Harriet Werley was the ‘2nd’ nurse informatician. Moved on to the 1970’s - HISs come into being; Omaha System; nursing research; NANDA begins. 1980’s next - education, professional associations, etc. 1990’s - professional associations again discussed (AMIA, ANA, NI-WG of AMIA, etc.); certification, and languages (NANDA, NIC/NOC, ICNP, etc.). 2000’s - ISO & CEN r/t terminology and other similar concepts; HL7; LOINC; SNOMED & IHTSDO; HITSP & CCHIT, too. Current research include Patti Brennan, Eun-Shim Nahm, C. Ruland, N. Staggers, C. Gassert & C. Curran are part of this area of activity. Leading ‘edge’ persons include ANIA (Delaney & Sensmeir); TIGER (Ball, Skiba, McBride), and Effken & Bickfor (occupational designation for informatic nurses in the N. A. Industry code). Future also discussed. Mary Etta Mills - next speaker. Discussing the UMAB SON NI history via dissertation titles & authors over the years. Now discussing several local efforts including CPOE, upgrading of info systems, and so forth (all institutional efforts per small survey results by the school). Current needs include progress notes, easy navigation of patient information, user friendly system, and so on. Very similar to institutional goals and direction. Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, history
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Peter and Scott are presenting a session titled ‘Developing new models of Personal Health Records: Health 2.0, Second Life and beyond’. We will be webcast, and will be attempting to live blog the session as we are delivering it (we like to live dangerously We will be running the presentation online as a GoogleDoc presentation file; you can access it at: http://docs.google.com/Presentation?id=ajjz7ngrhqv6_58cqnwtwc3 The presentation is also at: http://www.slideshare.net/drpeter/erdley-murray-sini2008-presentation-final/ We will be posting on coveritlive, so click on the following link to follow our report or access the replay: >>>
Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR, Health 2.0, Web 2.0, Second Life
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The ‘highest scholarship award’ for papers went to Cynthia Murphy and colleagues from University of Texas MD Anderson Cancer Center in Houston; their paper is titled ‘Patient entered electronic health records with EMR integration: lessons learned’.
We will be posting on coveritlive, so click on the following link to follow our report or access the replay: >>>
Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR, EMR, health record, cancer
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Clement McDonald is the lecturer this morning. Title “National Library of Medicine’s Personal Health Record Infrastructure”. Background provided about ’skunkworks’ he heads at Lister Hill of NLM. This presentation will be more on the technical side and not as conceptual as perhaps other presentations. First topic is ‘tailored vocabulary subsets’, using Rx norm as the example. Rx norm is a drug vocabulary (clinical drug code)indgredient dose form, route, strength, clinical drug code; specific to brand & generic versions with linkage. It’s being used in Medicare’s Pilot post acute care demo (www.pacdemo.rti.org). Rx terms = rx.Norm thinned, tweaked & supplemented by Lister Hill group of McDonald. Other tweaks include shortening (HCL vs. hydrochloride) and tall man lettering (to indicate differences) and adding synonyms & important supplies (SMX TMP to bactrim & septr); folate versus folic acid; supplies too (insulin needles). A structure beyond what is in Rx.norm - 1st & 2nd levels (ingredients + route; strenght & dose form) to pick the 1st and then the other. Keep it simple (short lists for ordering) philosophy. Rx.terms available prior to Nov. ‘08 meeting in CVS, xls and other simple file formats for viewing; no UMLS license required, either. Develop other consumer subsets for things such as problems, surgeries and things like thinning existing tables. LOINC & SNOMED supported by NLM for use in the PHR. Types of PHR include stand alone (pt. enter data); institution centered (portals for viewing existing EMR) and Linkers (manage the push & pull of data to & from many sources into a PHR). Pt centric includes own space by patient, gather data from all care sources BUT usually has to enter the data by hand. Institution ctr’d (pt portal) is a view into existing institutional medical record (VA is good example); may not allow direct entry by patient, too; mostly summary records, not detailed. Other examples of PHR is everyone (Google, Medicare (www.mymedicare.gov), Microsoft, Intuit (quickenhealth.intuit.com). There are no ‘pure’ linkers at this point. Toughest challenge is knowing how to know what is going where when shipping data to many parties. Google using a ‘token’ approach for this sort of thing. Illustrates code behind Google Health (XML coding; revision of other proprietary codes (LOINC)). NLM approach - patient centric; target market is adult caring for frail parent or young child. NLM has clinical vocab, content & tools; consuer oriented as well as clinician oriented knowledge source. Special features include controlled vocab for key items; decision support (but not code everything); click on links from specific content to specific sources; and minimum necessary patient ID data. Devlopment environment includes Ruby on Rails dev’t environment lots of java (new & borrowed - Dojo & Scriptaculous), most work done on desk top environments. Lots of vocabs included; functions of PHR includ record keeping for key data to fast links to NLM knowledge sources and such. Decision support is built-in and smart (rules can be nested, etc.). Reminder rules immunization to preventive testing and other future possibilities. Auto complete menus, synonym support, by code look-up, and begins with matches against what users enters (wild cards and such). This auto complete function is a tool within ruby-on-rails. A form for all reasons - shaped medicare’s post acute care project; not just for PHR, can capture content of any LOINC survey instrument. Underlying form builder tool; built as layer on top of a form builder (AFFAR - NLM developed open source); higher level than drupal or zope per McDonald. He includes an example of using forms presented by AFFAR; key point is everything is right at hand within database / form builder. Brief discussion of HL7 data type, too (can be variable in precision); coded data type of HL7 is also key. Edit checks are built-in to forms, too (defined within form field description). Other features include field helps, info keys, input helps, and such. Info buttons use Medline Plus, CDC, and so forth as determined by content or query/question. A list of initial record content is provided and ranges from surgeries, allergies, medicines, contact information, questions to ask your doctor, and so forth. For decision support user names & defines base variable (computer compiles into code). Shows demo to illustrate how the form changes on the fly depending on entered data. Demonstration / actual site is http://swdef.nlm.nih.gov/accounts/login. Well done and very enthusiastically rec’d by the attendees. Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR, NLM
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The Friday morning keynote lecture is by Clement J. McDonald, Director of the Lister Hill National Center for Biomedical Communications at the National Library of Medicine. His talk is titled National Library of Medicine’s Personal health Record Infrastructure’.
We will be posting on coveritlive, so click on the following link to follow our report or access the replay: >>>
Technorati Tags: SINI, nursing, Maryland, Baltimore, nursing informatics, PHR, NLM
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Thanks for blogging SINI Peter and Scott! Participated at SINI with great interest a couple of years ago, and had a wonderful time in Baltimore. When I combine the Coveritlive blogs with this 3D-image of UoM School of Nursing grabbed from Google Earth late this evening, this is about as close as it is possible to get to you from the other side of the pond; Oslo, Norway (